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Just had the Doc ring me to say after my blood tests he has referred me to a Rheumatologist. The joint pain I can handle at the moment but would very much like some advice on how to handle the body aches. I constantly feel like I have mild flu and it's quite debilitating. Any advice from someone who has this would be greatly received. Many thanks.
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Rheumatoid Arthritis on 18:10 - Oct 8 with 3046 views
I can’t help pal, but I certainly hope you feel better and find somethings that works to ease the symptoms soon 👍
Thank you. I can handle the joint stiffness but the feeling of aching is quite annoying to say the least. If left untreated can lead to heart attack and stroke apparently. Would never have believed that. If any of you get stiff joints along with fever get yourself to the docs. Don't think it's nothing.
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Rheumatoid Arthritis on 20:25 - Oct 8 with 2875 views
Sorry to hear that. It’s not something I know anything about, but looking it up on the internet (which I’ve no doubt you’ve looked at), it seems that there are things out there to ease the effects. The main thing I notice is that whatever they prescribe and advise (e.g. physio), behave and adhere to it!!
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Rheumatoid Arthritis on 00:00 - Oct 9 with 2631 views
My late mum had it and her mum before it so it was always likely I'd end up with it too.
I get it mostly down my right side and especially in my lower arm/wrist/thumb. I've been to pain clinic and worn splints but I find it so uncomfortable.
I use turmeric oil and capsules and drink as much water as I can. I exercise as much as I can when the pain is lighter. I've also got a few of those fidget resistance band things and stress balls that use to stretch.
was diagnosed with RA about 3 years ago mainly affecting my ankle joints and sometimes my finger joints , my rheumatologist put me on MTX initially quite a high dose via self administered injections after about 6 months he had found the right dosage, now my regime is one MTX 15 mg tablet per week but also one folic acid tablet the next day i attend the clinic every three months for examination and blood tests also as mine was in ankle joints he prescibed insoles had my latest appt tuesday everything good i am pain free ,walk the dog approx six miles per day the folic acid has stopped the flu like symptons i am 73 years old and RA has not stopped me being active just perservere till they find the right dosage for you.
Heinsberg Blue
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Rheumatoid Arthritis on 07:52 - Oct 9 with 2435 views
Rheumatoid Arthritis on 07:24 - Oct 9 by ellerblue
was diagnosed with RA about 3 years ago mainly affecting my ankle joints and sometimes my finger joints , my rheumatologist put me on MTX initially quite a high dose via self administered injections after about 6 months he had found the right dosage, now my regime is one MTX 15 mg tablet per week but also one folic acid tablet the next day i attend the clinic every three months for examination and blood tests also as mine was in ankle joints he prescibed insoles had my latest appt tuesday everything good i am pain free ,walk the dog approx six miles per day the folic acid has stopped the flu like symptons i am 73 years old and RA has not stopped me being active just perservere till they find the right dosage for you.
Thanks everyone. Really appreciate the feedback. Mine is exactly this. Ankles and sometimes fingers. I might get some folic acid to try. It's the flu like symptoms that is getting me down. Hopefully once I see the rheumatologist I can get life back on track.
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Rheumatoid Arthritis on 08:36 - Oct 9 with 2356 views
I've been diagnosed with similar, potentially the same at the grand old age of 31. Although they're calling mine inflammatory arthritis as my Rheumatoid Factor was negative.
They will likely start you off with Methotrexate which is a mild chemotherapy drug to take once per week via tablets. This must be supplemented with Folic acid as it reduces the side effect of the medication.
I had to stop as it was affecting my liver but they're now going to try me on it again. Fortunately other than a flare (which I believe was triggered by covid), mine has been relatively mild. However, I've long had tiredness which I believe may be related to this.
Either way, the NHS have been fantastic and I'm sure they will keep working to reduce or even remove your symptoms correctly. I didn't realise that there were sufferers of this on TWTD. Good to know there's many of us that can speak to each other about these things. Wish you the best luck in finding something to help you. There's so many medications these days to treat it, it's about finding the right one for you.
I've been diagnosed with similar, potentially the same at the grand old age of 31. Although they're calling mine inflammatory arthritis as my Rheumatoid Factor was negative.
They will likely start you off with Methotrexate which is a mild chemotherapy drug to take once per week via tablets. This must be supplemented with Folic acid as it reduces the side effect of the medication.
I had to stop as it was affecting my liver but they're now going to try me on it again. Fortunately other than a flare (which I believe was triggered by covid), mine has been relatively mild. However, I've long had tiredness which I believe may be related to this.
Either way, the NHS have been fantastic and I'm sure they will keep working to reduce or even remove your symptoms correctly. I didn't realise that there were sufferers of this on TWTD. Good to know there's many of us that can speak to each other about these things. Wish you the best luck in finding something to help you. There's so many medications these days to treat it, it's about finding the right one for you.
It's been quite the year for me!
This diagnosis divorce now redundancy
Ahh life!
Is it axial spondyloarthritis or Ankylosing spondylitis you have been diagnosed with. This is an inflammatory arthritis that typically begins at a younger age. Though I was diagnosed with it later in life.
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Rheumatoid Arthritis on 13:07 - Oct 9 with 2156 views
Is it axial spondyloarthritis or Ankylosing spondylitis you have been diagnosed with. This is an inflammatory arthritis that typically begins at a younger age. Though I was diagnosed with it later in life.
I just had a full body MRI to check for this, but it's affecting my wrist rather than my back so they're looking at all options. Potentially PsA.
Sorry to hear you've been suffering with it, how have you been doing?
I just had a full body MRI to check for this, but it's affecting my wrist rather than my back so they're looking at all options. Potentially PsA.
Sorry to hear you've been suffering with it, how have you been doing?
Compared to most I have been fortunate as I have read a lot about younger people being heavily impacted it. It came about during the pandemic when I moved even less than normal! It cause stiffness, reduced flexibility and (heavy) aching in my neck and aching around top of back and shoulders. My lower back is fine. I work at a computer which doesn't help. The psychological leap to having a chronic condition has been difficult. Have been getting away with just using anti inflammatory gels thus far but may need to switch to tablets in the near future. I hope you do as well as poss with your condition.
[Post edited 9 Oct 2024 15:55]
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Rheumatoid Arthritis on 16:03 - Oct 9 with 2006 views
Do you have any other symptons apart from those you mentioned? Rash, migraines etc? I suffered with something called Muckle-wells syndrome for years until the royal Free in London found a cure & 2 of those being Arthritis and the fevers / mild flu that you said.
Long term RA sufferer here too. Started with really bad swelling in just my right knee at about 21 which as I was so young and only had an impact on one joint no-one really knew how to manage. I ended up just getting regular steroid injections to get rid of the swelling which obviously worked in that respect but ended up crumbling my knee joint to the point I ended up with a knee replacement at 34.
At that point I started to get other issues eg fingers and my other knee. Eventually I landed on a treatment course of MTX and Hydroxycholorquine which means thankfully for a year or so now I have been pretty much symptom free so my other joints haven't really suffered too badly to any degree.
The key in my opinion is to get the meds right as soon as possible (although it will take time as they need a decent amount of time to judge the efficacy of any changes). Also don't be afraid to pester the NHS for results (the old addage is he who shout's loudest etc) and make sure you get a RA nurses contact details early on as they can be contacted directly by phone rather than waiting for an appt with your consultant.
Also, excercise as much as your body will allow you.
Steroids when used incorrectly will not have a great long term impact but can be used in short doses orally to great effect to manage short term flare ups.
I guess in summary I am in a good place now but it has taken a long time to get there and has cost me a knee joint which will eventually need replacing again. I would say however you feel now, there is defintly a route through to feeling better and keeping it all under control and living a normal a life as possible.
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Rheumatoid Arthritis on 16:41 - Oct 10 with 1580 views
Rheumatoid Arthritis on 15:25 - Oct 10 by Leics_Blue
Long term RA sufferer here too. Started with really bad swelling in just my right knee at about 21 which as I was so young and only had an impact on one joint no-one really knew how to manage. I ended up just getting regular steroid injections to get rid of the swelling which obviously worked in that respect but ended up crumbling my knee joint to the point I ended up with a knee replacement at 34.
At that point I started to get other issues eg fingers and my other knee. Eventually I landed on a treatment course of MTX and Hydroxycholorquine which means thankfully for a year or so now I have been pretty much symptom free so my other joints haven't really suffered too badly to any degree.
The key in my opinion is to get the meds right as soon as possible (although it will take time as they need a decent amount of time to judge the efficacy of any changes). Also don't be afraid to pester the NHS for results (the old addage is he who shout's loudest etc) and make sure you get a RA nurses contact details early on as they can be contacted directly by phone rather than waiting for an appt with your consultant.
Also, excercise as much as your body will allow you.
Steroids when used incorrectly will not have a great long term impact but can be used in short doses orally to great effect to manage short term flare ups.
I guess in summary I am in a good place now but it has taken a long time to get there and has cost me a knee joint which will eventually need replacing again. I would say however you feel now, there is defintly a route through to feeling better and keeping it all under control and living a normal a life as possible.
My dad had ankylosing spondylitis from childhood (leg brace etc) and as you / others above say, they key to dealing with it is medication management. He was on huge doses of methotrexate, Tramadol and many others towards the end of his life, but it is something you can live / thrive with. Proud of my old man - he led a full iife - used to limp around the street playing football with me, even when his 'screws' , as he called them, were playing up and had a career in the beeb that I can only dream of.. OP, its not a great condition but you can make it work.
[Post edited 10 Oct 2024 16:41]
Has anyone ever looked at their own postings for last day or so? Oh my... so sorry. Was Ullaa
Please do your own research and discuss with your GP/consultant (although they will probably not have heard of it and will therefore say "no"). You do need to be careful when taking with other medicines.
DMSO should be diluted with water and can be taken orally or externally. If on the skin, you must wash and dry first. It goes through the skin quite rapidly and may take whatever is on the skin with it!
If you have tattoos or nicotine stains then avoid those areas.
You can buy it on Amazon but get the medical grade. Amazon also have a slim explanatory book (Healing with DMSO).
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Rheumatoid Arthritis on 19:15 - Oct 14 with 1002 views
Had to deal with it since my early 20s (I'm in my mid-40s now). A lot of it is getting your meds right, and Ipswich hospital's rheumatology department is really good. Other than that, heat pads or hot baths are good for alleviating symptoms (I probably keep Radix in business single-handedly!) and listen to your body. If you need to rest, rest. Better to have a day or two taking things a but slower than push through and then need a lot longer to recover. Hope it's under control soon.
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