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Please give me something positive to cling to. My youngest daughter has just been rushed to Addenbrokes with a suspected brain tumour. Give me some positives. I'm in bits. Do you see people in intensive care who survive this. Shouldn't put it on here but I live on my own and just need reassurance? I thought I was strong.
[Post edited 21 Jun 2020 16:06]
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Blue Badger...I know we've had our differences but on 18:29 - Jun 21 with 2112 views
Blue Badger...I know we've had our differences but on 18:17 - Jun 21 by pistonbroke
Hi , I’ve had differences with blue badger in the past but I do know people he has worked with and firstly let me say he is a brilliant doctor and physician no matter what he says
Really sorry to hear about your personal circumstances but honest she is with brilliant people and if anyone can help her I can gaurentee the staff at addenbrooks will True story now so never give up hope , about 15 year ago my best mates brother was given 3 month to live , , had severe cancer , anyway 15 years later he is still alive doing well and has fathered a child after all the chemo that is meant to make you sterile
If you really knew people that I work with you'd know I'm not a doctor...
I'm one of the people who was blamed for getting Paul Cook sacked. PM for the full post.
This happened with my older sister in 2000, so I know exactly how you’re feeling. She was 41 at the time and it was so utterly sudden and traumatic. She’s still with us now and you’d honestly never know it had happened. As difficult as it is, stay strong and positive. The specialists in this field are utterly phenomenal.
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Blue Badger...I know we've had our differences but on 18:47 - Jun 21 with 2051 views
Addenbrooke’s is a world renowned, teaching hospital. In terms of best place to be right now, she is in very safe hands. My son has had a few health issues (by no means to The level of your daughters) and the care he’s received at Addenbrooke’s has been exceptional.
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Blue Badger...I know we've had our differences but on 20:04 - Jun 21 with 1923 views
Sorry to read this. And I can assure you, at such a worrying time for you, you will be very much in my thoughts. Having been through a difficult time myself recently when KJ was in hospital, the 'family' of TWTD were a great support, so if there's anything we can do, please do take up on the offer from people, myself included, of any help you need.
Wish you and your daughter all the best for good news soon.
Blue Badger...I know we've had our differences but on 16:56 - Jun 21 by BlueBadger
I'm PM-ing as well to make sure this has the best chance of getting through.
Outcome's going to depend on the size, age and location of the tumour - I've known people survive for a number of years after a treatment, hell, a former colleague of mine is working at A&E there after suffering one in her early 20's.Really sorry, can't be any more specific than that at this point.
From your post I'm guessing she's in ITU - early Intensive care in these cases is often of a 'protective' nature - we look to keep blood pressure low as this will keep cranial pressure(and thus, risk of pressure in the skull damaging the brain), so if you've been told she's in a coma(the word 'induced coma' may have been used) - and this will likely be to protect her. This will involve her being sedated, placed on a ventilator and being attached to various other forms of close monitoring. They may, at some point have to shave her head(partially or fully) if surgery or EEG(electronic brainwave monitoring) leads need attaching.
They'll need to scan(almost certainly CT and probably MRI) and decide a course of management from there which I wouldn't like to speculate on.
With pandemic visiting measures in place, it's going to be a pretty bloody awful wait for phone calls for you(sorry, can't sugar-coat that), I'm afraid - as a general rule 'no news is good news', but this is by no means gospel.
Addenbrooke's should have some kind of family liason service set up so you can get in contact for advice about how she's doing via phone - they should be able to set up some kind of password system so you can get phone updates or even, if appropriate, make Zoom calls when it's right to do so.
Next 24-72 hours will probably be key in establishing how things will go, but again, this not a hard-and-fast rule.
My guess is your daughter is somewhere between teens and early 30's? so will probably have her age in her favour. The fact that they've rushed her over there quick sharpish is possibly encouraging in itself(neurosurgeons and neurologists are notoriously choosy with their patients).
She is MOST definitely in the right place, he fact that they've rushed her over there quick sharpish is potentially encouraging in itself(neurosurgeons and neurologists are notoriously choosy with their patients).
I'm sorry I can't offer you very much by way of specifics and good news, that said, my guess is your daughter is somewhere between teens and early 30's? so will probably have her age in her favour. The fact that they've rushed her over there quick sharpish is possibly encouraging in itself(neurosurgeons and neurologists are notoriously choosy with their patients).
These brilliant people are a superb source of support and advice - I can speak from persoanl experience here after a family member suffered a cranial bleed last year
Finally, make sure you're looking after yourself - if there's a friend or relative who can safely visit or stay with you(or you with them) do that. Certainly keep in touch with friends and family. Make sure you are looking after yourself - ensure you're eating, drinking and resting(I never say 'sleep' - that's going to difficult), try to avoid drugs and alcohol as best you can but be realistic with yourself about this - if you need a beer or smoke do that, just don't go mad.
You're more than welcome to drop me a PM if you have specific questions - I can't get too technical regarding her condition as, like I say, neurology and neurosurgery are not my strongest fields of knowledge. I did find that these brilliant people can be a great source of support - they certainly were for myself and MRs Badger when a family member suffered a cranial bleed last year:
Just passing on a recommendation for Headway, I did not use them myself when I was recovering from the subdural haematomas I suffered eighteen months ago but was told about them by the guy in the next bed on the ward, and he was in way worse condition than I was at the time but had managed to use their services and liked them a lot. They have support groups all over the United Kingdom including Suffolk:
And to gtsb - hope that things are going as well as can be hoped for at the moment, we all dread things happening to our offspring so I can only say that my thoughts are with you at the moment.
Sorry to hear this gtsb, and hope all goes well for you and your daughter.
My mother in law had a brain tumour about 20 years ago, before I was with my now wife, sounded harrowing and ended up having a 7 or 8 hour operation and a long time in hospital. She's now in her late 50s and bar a complete loss of hearing in one ear you would not know she has ever had it (and the hearing you wouldn't know unless close to her).
I'm sure there are lots more positive cases out there to cling to as well - and as BB says, look after yourself as you need to be able to be there when required!
I really hope they are able to help her and she goes on to make a speedy recovery. I can only try imagine how tough it must be at the moment but I offer you my best wishes and thoughts for her and all of you.
Blue Badger...I know we've had our differences but on 09:59 - Jun 22 by noggin
Difficult to know what to say, but best wishes to you and your daughter. Crying is a good thing, by the way.
Wish I could stop crying mate. Just randomly keep doing it. We got the dreaded news this morning that she definitely has a growth at he back of her brain. I spoke to her on the phone this morning and she was crying and telling me she is scared and wants me there. Nobody is allowed to see her though. That was the most gut wrenching thing I've ever experienced. I so want to be there holding her hand. Thanks again for the kind words all.
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